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The Lowe Syndrome Trust
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The Lowe Syndrome Trust
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Information

Links

Lowe Associations & Resources

  • Curelowe.com
  • EuroDis Lowe Syndrome – The Voice of Rare Disease Patients in Europe
  • Lowe USA (LSA)
  • Lowe France (ASL)
  • Lowe Italy (aislo) Asociazione Italiana Sindrome di Lowe
  • Lowe Spain (asle) Asociacion Sindrome de Lowe de Espania
  • Lowe Germany
  • Baylor College of Medicine, USA
  • Lowe in China
  • Lowe Patient Registry

UK Disability Support Groups

  • Paul James http://www.livingwithlowes.com/
  • The Counselling Directory for Disabilities UK
  • CLIMB UK: Children Living with Inherited Metabolic Disease
  • Hoffman foundation for Autism
  • The Challenging Behaviour Foundation
  • Family Fund Grant-Giving for UK Families with Disabled Children
  • Foundation for people with learning difficulties, UK
  • Contact a Family UK
  • IPSEA Independent Panel for Special Education Advice
  • National Autistic Society
  • Kidney School
  • Wescfoundation care center Devon

General Medical Sites

  • https://ghr.nlm.nih.gov/condition/lowe-syndrome
  • Index of UK healthcare resources www.healthcentre.org.uk
  • Search for medicines
  • Fanconi
  • Acidosis
  • Ricketts
  • Poor growth
  • How to read a blood test
  • Epilepsy

Charity Overview

Stay up to date with what is going on with the LST chairty in this overview.

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NHS and Family Info

A page with useful NHS information for families researching Lowe Syndrome.

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UK Benefits & Social Services

Information for people seeking to claim disabled benefits in the UK.

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Contact & Donate

There are other ways to donate, which you can view by clicking the button below.

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Latest News

Keep up to date with what is going on with The Lowe Syndrome Trust.

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Research Grants

Call for research proposals for Lowe Syndrome.

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    • Links
    • A&E Patient Sheet
  • News & Articles
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  • Covid 19 Statement

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Registered Charity Number: 1081241