Information
Trustees & Patrons
Trustees
- Joseph Laycock – Chair
- Micheal Fennings – Finance Officer
- Anastacia Lanzara – Clinical Research Officer
Our board of trustees is made up of people who we trust!
The trustees make sure the Lowe Syndrome Trust is running well and is going what it is set up to do – they are responsible for keeping us moving forward in the right direction. The trustees freely give their time and energy to make sure we spend our funding wisely and stay within the law, and also represent the charity at numerous important events and meetings.
CEO, Office Administration and Special Advisors
- Andrew Thomas – CEO
- Anna Bogdanova – MSc Health Psychology, Charity Admin and Project Manager
- Anastasia Pia Lanzara – MRes Clinical Research
- Debra Harter SEN Head Teacher
- Paul James – Representatuve and Advisor, Lowe Syndrome Sign for Inclusion
Patrons
- Jonathan Ross – OBE
- Tony Hadley – MBE
- Penny Lancaster
- Graeme Swann
- Lisa Voice
- Melanie C
- Melanie Blatt
- Melanie Sykes
- Mathiue Flamini
- Mark Emms
- Oliver Evans
Medical & Scientific Advisory Board
- Professor Robert Unwin, Professor of Nephrology & Physiology, University College London
- Dr Richard Sandford PhD FRCP, Consultant NHS East Genomic Hub Cambridge
- Dr Jenny Gallop PhD, Group Leader Gurdon Institute Cambridge University
- Dr Detlef Bockenhauer, Consultant Nephrologist Great Ormond Street Hospital
- Professor Shamshad Cockcroft, Department of Physiology, University College London
- Professor Philip Beales, Hon Consultant in Clinical Genetics, Institute of Child Health
- Dr Peter Cullen
- Dr Mike Harrison
- Professor Peng Khaw, Professor of Glaucoma and Ocular Healing and Consultant Ophthalmic Surgeon, Institute of Ophthalmology
- Professor Helen Cross, Reader, Paediatric Neurologist, Epileptology, GOS London
- Mr Nimalan Maruthainar, Consultant Orthopaedic Surgeon Royal Free Hospital
- Dr Rudiger Woscholski, Senior Lecturer Division of Cell & Molecular Biology Imperial College London
- Dr Martin Lowe PhD, Manchester University