Lowe Syndrome Trust is committed to reduce isolation of families affected by Lowe syndrome.

The charity is funding a number of Lowe family outreach meetings throughout England as an opportunity for families to meet each other, establish local hubs for mutual support and help accessing local social and NHS services, and participating in potential medical research trials. LST will organise the venue hire and local families expenses for attendance (expensed via
claim form).

LST has previously held events in Cambridge, including specifically for RAREfest, and in Newcastle.

We are looking for families who would like to participate or help organise an event by inviting other families.

We will then invite using the Lowe family Facebook page.
https://www.facebook.com/groups/1418717108395463/

If you would like to participate, please contact anna@lowetrust.com.